Pancakes! Though I cannot claim that they taste or feel anything like normal pancakes, ha! They are flat and oily and taste just like their name, sunbutter and quinoa. I added the sunbutter to improve the flavor from just quinoa. Since being on a TED, I really enjoying having something a little different. I drizzle mine with pure maple syrup or cooked blueberries and maple syrup (with Tapioca startch if I want a thick sauce).
Again, I have no measurments for you, but I will try to measure it next time I make them and will update the post.
I mix sunbutter, coconut oil and honey together (Use maple syup if for baby under 1). Then I sprinkled the quinoa flour in till it had a smooth spreadable consistancy. If it gets too thick I add water, coconut milk or even pear juice. Lastly fry them in a pan with a small amount of coconut oil.
We recently introduced Miss A to coconut hoping it would be a great source of fats for her. She loves it! It also opens up a multitude of possibilities as there is coconut oil, shredded coconut, coconut flour, coconut milk, and coconut butter or manna. One of our challenges though is she refused puree. She wants to feed herself. But she only recently popped her first 2 teeth. So she has limited foods, that have to be in small soft chunks. Time to get creative. Enter the Coconut Meltie.
I’m afraid this isnt excatly a “recipe” as I never measure anything. But you can’t mess it up!
I took her safe foods, blended together and froze them in small plops. This way she can pick them up and feed herself, yet they melt fast into smooth soft puree.
I used pepared quinoa flakes, pears and coconut butter. Blend them together so they are a soft thick puree. Then make little plops into a freezer safe container.
Wow, what a crazy summer. I’ve been wanting to write but have just not found the time. Summer is always the busiest for my Hubby with work, often working evenings and weekends to make up for any vacation time as well as keep up with the demands of urgent projects. We were able to get away for some fun family time with both sides. Huge shout-out to all our family who have been so supportive, encouraging and diligant in keeping Miss A safe during our vacation. It was a source of anxiety to imagine all the hazards of food she could find and consume, but everyone was so careful and it all went well. I have also been incrediably thankful for the online support I have recieved from other FPIES parents who are full of knowledge, encouragement and a complete understanding of our frustrations. (So if you’re reading this, thank you!) I will be writing a bit more detailed on Miss A’s journey both to help answer questions from friends and family, and to hopefully help any other FPIES families finding themselves in the same place.
We are starting to settle in for the fall and looking forward to getting into a routine, both with homeschool and more food trails. In the last months we have had some huge successes in Miss A’s food trials, earned through some serious sacrafice on my part. Miss A has two different types of reaction to food, she can react “chronically,” typically through breastmilk, which is mucousy and/or bloody diapers, pain and discomfort, gas, sweaty skin and sleepless nights. An “acute” reaction is vomiting, diarrhea, lethargy, dehydration. Her diagnosis was based on acute reactions to banana, avocado and rice. However as we learned more about this syndrome and kept a careful observation of her, we learned she was having chronic reactions through breast milk as well. Not all FPIES kids do, but we soon learned Miss A is quite sensitive to what I eat.
So began my quest for the illusive “baseline” diet, where I find the magic combination of food that does not result in any reactions. I had been dairy free since she was weeks old, recognizing her allergy to that early (thanks to my experience with middle child Miss B). After the FPIES diagnosis I switched to a Paleo diet. She was still reacting so I then bumped down to a Auto Immune Protocol Diet removing all inflammitory foods such as grains, eggs, nuts, seeds, nightshade vegtables, sugar and sweetners, and processed foods. There had been some improvement with her chronic reactions, but we still weren’t at baseline (no reactions). So like many other FPIES momma’s I cut out most foods going on a Total Elimmination Diet (TED). I chose one or two foods from each group in hopes that we could reach baseline and then slowly add foods back in. I scanned FPIES lists of most tolerated foods and went with lamb, pears, blueberries, quinoa, parsnips, zucchini, coconut and olive oil. This is where things changed. I was shocked and estatic at the change in our little girl. Surprisingly the difference happened overnight. We celebrated her first normal poop! Hallelujah!
From there the choice is to introduce new foods for myself, or her but not at the same time. It is a slow process. Miss A now has 3 safe foods, quinoa, pears and sunflower seed butter. We are currently trialing coconut with high hopes. I have since been able to add a few items to my diet as well, my most recent additions being grass-fed beef and russet potatoes. I have come to greatly appreciate the many flavors of food and highly anticipate being able to eat more. It has been a challenge, not being able to eat out or have easy snacks, and making separate meals for the rest of my family. I’m often hungry. Since this FPIES journey started I have lost about 30 lbs. One of my greatest struggles is finding the balance between keeping Miss A healthy, and keeping myself healthy with energy for the rest of my family. We have put much thought into starting Miss A on a highly specialized elemental formula and may be at the point of turning to that for extra nutrients. But it’s not a guarantee she will tolerate that either. So this is where we are now.
With the leaves changing colors I am thinking I will have to introduce pumpkin next, as I am one of those crazy Pumpkin spice lovers, haha. I hope to post some of the recipes I have found or created to help other TED mommas and FPIES babies.
I was originally planning on starting school a bit later, but the girls are so excited and eager that we will start tomorrow, coiniciding with the public school kids. I’m excited to share with you all how are first week goes and all the fun we have 🙂
Thanks for listening! Coming up next, recipies and starting school!
Today we found strawberries on a great sale, so we loaded up on them and spent the afternoon washing, slicing, blending and filling up the dehydrator.
A few years ago when Ms. S was about 2, she loved eating our homemade strawberry fruit leather, but called it strawberry ham. I guess she thought it looked like deli meat. It has been one of those cute things that your kid says and just sticks. So today we blended up some strawberry rhubarb fruit leather, sprinkled with some chia seeds for extra nutrients and some texture. We also sliced up many strawberries to dehydrate for adding into oatmeal or trail mix.
The sale was great timing as we are starting to prepare for our big adventure for the summer. We have booked our spots at a back country campground, and will be backpacking with our girls for a 2 night trip. 7km in, a rest day, and 7 km out. It is a beautiful place and a gorgeous trail, accessible enough to push the chariot loaded with pink clothes, fluffy sleeping bags and yummy strawberry ham. Sound a little crazy? Maybe. But these crazy adventures give me a burst of energy and sense of life and wonder. They help me to refocus on my great life purpose, as we step outside our regular routine, standard views, and mundane tasks.
We have done this trail before, when Ms. S was 2 and Ms. B was 11 months old. It was epic. It was an unusually warm fall, and we hiked it in October. It was stunning. The crisp air, blue water, and stunning night sky. Ms. B hardly slept that night. On the plus side, we didn’t need to worry about wildlife as I’m sure her crying kept everything far far away. But that was how she was as a baby and we thought, “We could stay up all night at home with a crying baby, or have a grand adventure with a crying baby.” But the lack of sleep and crying baby isn’t what I really remember about that trip, it was the quiet waters, the mist on the mountains, the crisp air, the stars, and watching Ms. S explore in the wild. Since we’ve been married, Ben and I have had many adventures in which we have coined the phrase, “You don’t have to be having fun to have fun.” Now I really sound crazy. But it helps me to remember that things can’t and won’t go perfectly. And that the things that are hard, are often the most memorable, and reap the greatest rewards.
So here we go again. I’m excited to return and to share natures beauty with our girls. I better bring lots of strawberry ham.